Back from Italy and two

My son and I had a wonderful 10 days in Italy. I am so glad I went. A week before leaving I discovered a lump in my upper arm, about 2,5 inches in diameter. So, my BMT oncologist, who is 3 hours away from here, told me to see a local doctor before going on my vacation. I finally saw a local oncologist two days before leaving. He had me get an ultrasound that same day and then called me with the results and asked if I wanted to cancel my trip. He wanted me to get an MRI right a way. I wasn't going to cancel the trip - I wanted to live to the fullest and deal with whatever was going on in my body after the trip. So, I came back last week and had an MRI on Monday. Turns out that the growth in my arm is a lipoma. The radiologist also reported that I have a 2 inch growth right below where brochi meet, between the lungs. He said that it was seen on my CT scan a year ago and hasn't really grown since then. I didn't even know I had it... Anyway, after I got over the shock, I met with my BMT oncologist yesterday. He will have me get a PET scan the next time I see him. He doesn't advise that I do anything about the growth in my arm.

I am getting used living with the unknowns. While my initial reaction was to get a surgery and get that lipoma out of my arm, I understand that it would involve a major surgery. Plus, the growth may come back. The growth between my lungs is more worrysome now. My Dr. said that it's a good sign that there hasn't been any major changes in it for a year, but I'm still wondering if it's a new cancer or what. Getting that MRI was like opening a Pandora's box - once all these things escape, it's hard to put them out of my mind and close the lid.

Ilsa sent you a prayer.
Ilsa sent you a hug.
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Vital Info


July 9, 2016

Cancer Info

Acute Myeloid Leukemia

March 20, 2016

Life is a gift from God. Even on my bad days I can look for things around me to be grateful for. I can't control my diagnosis, but I can control what I focus on.

Flu symptoms, shortness of breath, chest pain

Had two induction rounds and two consolidation rounds.

Had a stem cell transplant in August of 2016. Suffered kidney disease as the result of transplant or chemo right before the transplant. Kidney problem lasted for three weeks and then went away. In October I was diagnosed with graft vs. host disease (intestinal). I was on Methylprednisolone until the end of November. In December GVHD symptoms came back, so I was put back on steroids until the end of February of 2017. In March I developed shingles, and was treated with for that with antiviral IV meds in the hospital and then for two weeks at home. I still have some rash from shingles (June 2017), but it's not too bad.


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