Jane2016's Cancer Blog

I have beat my cancer, but my sister didn't

About four months after my leukemia diagnosis in 2016, my older sister was diagnosed with stage 2 breast cancer. While I chose to fight my cancer with all the might and every single treatment my doctors proposed, my sister chose to pursue alternative treatments. As I recovered, she was getting worse. It was so painful to watch her deteriorate before my eyes. Last Saturday she finally lost her battle and died. I feel so much sadness that her life could have been saved, but she chose to focus completely on nutrition and potions from around the world. 

Olga sent you a hug.
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I am sorry for your loss, Jane. It's so sad and heartbreaking.
Jane2016 likes this comment
Thank you, Olga! I'm so fortunate to have my family surround me and love me during this difficult time.
Such sad news, I'm so sorry. Some people go that route, you sister was not alone. I personally would never forgo conventional medical treatments for alternative treatments because the science is usually not there. But she must have had her reasons. Your right, it must that been so difficult to see happening. Hugs to you and to your whole family.
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Thank you Deborah! My sister watched me go through many rounds of inpatient chemo and didn't want pain and suffering like that for herself. I told her that chemo drugs for breast cancer were very different than mine. She would have had outpatient chemo, which I understand is quite tolerable. She ultimately went through a lot more pain and suffering than I did. What a tragedy!
I'm afraid pain and suffering is part of the beast, no matter what treatment you go with. But I would always want to go with the one most likely to succeed, and I know that's how Roger felt too. Some people do get past cancer, something that didn't happen even 30 years ago. Why this happens to some people and not others is a mystery. Why Roger got pancreatic cancer is a huge mystery to us but once it appears you fight it. He would say, why wasn't it prostate cancer, at least he could have lived with that much longer. I'm so sorry for your pain, I know the deep sadness that comes with loosing a loved one. I am in a grief group and it is helping. I attended one that turned out to be religious based, this one is run by a major hospital and is run by the clinical staff but they are very good. They are very gentle with us and accepting of what ever we say or do. I think I have finally found the right one.
Jane2016 likes this comment
Its so nice to hear you are doing well Jane. Another traditional medicine success story. My condolences on the loss of your sister. I can't even say any more on the topic of alternative tx because it makes my blood boil. However, I understand that we are each masters of our own fate. God bless.
Jane2016 likes this comment
Thank you, Marcia! I'm also very angry that people are dying needlessly because they follow snake oil salesmen. That's exactly what happened to my sister. She would not listen to me. She saw first hand how I recovered from leukemia, when my mutation survival rates were only 19 percent. She actually was recommending that I start drinking ox blood potion to strengthen my immune system. I just couldn't believe what I was hearing! She was so deceived by this whole movements.
Marcia likes this comment
Oh Lord Jane, ox blood, you must've been horrified. I'm sorry you had to endure that. There's this sicko on YouTube, Chris, claiming to have been cured by diet!
I am so sorry for your loss.
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Three year anniversary

Three years ago I started feeling the first symptoms from AML, but wasn't diagnosed until the end of March of 2016. What a journey it has been, but I am happy to report that I am doing very well. Last fall I moved to the Bay Area from Michigan to start a new job, and I love California. I haven't had any luck trying to get to see an oncologist that specializes in AML/stem cell transplants to continue my follow-ups, but I am doing well enough not to need extra care. It takes forever go get to see a doctor here, any doctor. I will finally meet my new family physician in a week and a half. I'm hoping everything will go well.

Going back to work was a rough transition, since my job is very fast paced, intense and requires using my critical thinking skills. I went from being at home all day, resting when needed, slow pace indeed, to working 9 hour days at a major university. I definitely needed more energy to get through these long days in the beginning, so I started walking every day before work and during my lunch break. It's fortunate that the weather here is very conducive to being outside year round. These daily walks greatly improved my energy levels. I now walk about 30 miles a week, including hiking in redwood parks and on the shore of the Pacific. I am finally feeling comfortable doing my job and get everything done. When I get home after work, I usually just rest and eat my dinner. I am too tired to do shopping or any other activity, but I am fine with that.

In July I will meet the young man from Germany who donated his stem cells to me. I am so excited about being able to say "Thank You" in person. What an incredible gift he gave me! I wouldn't be here if it wasn't for him.

Olga sent you a hug.
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Vital Info

Posts

July 9, 2016

Cancer Info

Acute Myeloid Leukemia

March 20, 2016

Life is a gift from God. Even on my bad days I can look for things around me to be grateful for. I can't control my diagnosis, but I can control what I focus on.

Flu symptoms, shortness of breath, chest pain

Had two induction rounds and two consolidation rounds.

Had a stem cell transplant in August of 2016. Suffered kidney disease as the result of transplant or chemo right before the transplant. Kidney problem lasted for three weeks and then went away. In October I was diagnosed with graft vs. host disease (intestinal). I was on Methylprednisolone until the end of November. In December GVHD symptoms came back, so I was put back on steroids until the end of February of 2017. In March I developed shingles, and was treated with for that with antiviral IV meds in the hospital and then for two weeks at home. I still have some rash from shingles (June 2017), but it's not too bad.

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